Findings from the Utah Autism and Developmental Disabilities Monitoring (UT-ADDM) project help us understand more about the number of children with autism, the characteristics of those children, and the age at which they are first evaluated and diagnosed....
The Autism and Developmental Disabilities Monitoring (ADDM) Network is a program funded by CDC to collect data. This information is used to better understand the number and characteristics of children with autism spectrum disorder (ASD), cerebral palsy (C...
"The Individuals with Disabilities Education Act (IDEA) is a law that makes available a free appropriate public education to eligible children with disabilities throughout the nation and ensures special education and related services to those children, su...
"Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved pub...
"The Autism Systems Development Program seeks to advance, educate and empower the lives of individuals affected by Autism Spectrum Disorder (ASD) in Utah by monitoring occurrence, reducing the age at first diagnosis, referring to services, facilitating re...
The University of Cincinnati's Center for Excellence in Developmental Disabilities and the Nisonger Center have created a 2-hour online training on introductory information about the impact of the opioid crisis on young children.
"The Sie Center for Down Syndrome provides comprehensive consultation for infants, children and young adults who have Down syndrome. We partner closely with your child’s primary care provider and provide services starting at prenatal diagnosis up to age 2...
The Center for Disease Control (CDC) has a whole page dedicated to sharing information and resources to support the mental health of people with disabilities.
"Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and...
DHHS's Find an Autism Evaluation Provider form.
The Genetic Navigator Program is an initiative from Mountain States Regional Genetics Network. It helps families navigate the genetic services system in their state!
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
"The Integrated Services Program assists families of children and youth who have special health care needs by facilitating direct clinical services, care coordination, transition to adulthood, and advocating for primary care and comprehensive health care....
Pregnancy resources from the Utah Department of Health's Maternal and Infant Health Program. These resources are for women and families who struggle with substance use and addiction.
DHHS's maternal mental health resources.
The Medical Home Portal is a great place for parents, physicians, and professionals to go for more information and resources on Neonatal Opioid Withdrawal Syndrome (NOWS). It explains what NOWS is, symptoms, how to care for a baby with NOWS, and lots of h...
DHHS's mental health resources
Check out the Mental Health and Developmental Disabilities National Training Center free training modules.
"Smell the flower and blow out the candle is a simple way for children to practice deep breathing. Children imagine smelling a flower (inhale) and blowing out a candle (exhale)."
Support, resources, and information for all caregivers of young children prenatally exposed to opioids.
Information, resources, and tips for caregivers of children who have been prenatally exposed to opioids.
NAMI is the nation's largest grassroots mental health organization dedicated to building better lives for the millions of Americans affected by mental illness. Check out their website for resources, training, information, and more.
National Alliance on Mental Health (NAMI) has a page focused on providing resources and information to support the mental health of people with disabilities.
Check out the University of Utah's Program of Addiction Research, Clinical care, Knowledge, and Advocacy (PARCKA) page, which has great resources related to NOWS. They have resources like informational videos from Dr. Bhanu Muniyappa and several webinars ...
This infographic shares the impact prenatal exposure to opioids and other drugs may have on a child's behavior, sensory, learning, vision, and speech development, as well as follow up care and what to expect.
When a child has had prenatal exposure (PE) to opioids and other drugs, they are at higher risk for some developmental delays and emotional dysregulation, which can affect them throughout their lives. This infographic shares the impacts of PE can have on ...
"Sibshops provide siblings of kids with disabilities with peer support and information in a lively, recreational setting."
A list of different organizations and resources in Central Utah for providers to use when helping clients and families.
"Americans with Disabilities Act (ADA) The ADA prohibits discrimination on the basis of disability in employment, State and local government, public accommodations, commercial facilities, transportation, and telecommunications."
"The 52-page resource guide provides a broad overview of Section 504 of the Rehabilitation Act of 1973 (Section 504). The guidance describes school districts’ nondiscrimination responsibilities, including obligations to provide educational services to stu...
UtahOpioids.org is a part of the Utah Rural Opioid Healthcare Consortium (or UROHC). They share resources, expertise, and efforts from different organizations to combat the opioid issues in Beaver, Carbon, Emery, Grand and Iron Counties in Utah.
"The Parent Training and Information (PTI) project is the “heart” of the Utah Parent Center and has been continuously funded since 1983. This project is funded by grant #H328M200028 from the U.S. Department of Education, Office of Special Education Progra...
"The Sibling Project at the Utah Parent Center was built to support Siblings of People with Disabilities throughout their lives. Our project provides information to parents, and adults who are transitioning into the role of caregiver. We also provide free...
The UPCA provides training and promotes a sustainable future for substance use prevention coalitions. Their community coalitions strive to reduce substance use risk factors, increase protective factors, and improve mental health.
